{"product_id":"chasing-miracles-the-crowley-family-journey-of-strength-hope-and-joy-9781557049100","title":"Chasing Miracles: The Crowley Family Journey of Strength  Hope  and Joy","description":"\u003cp\u003eWhen John and Aileen Crowley learned that their two youngest children had a rare and little understood genetic disorder  they didnt hope for miracles: they made them happen. In 1998  15-month-old Megan and 4-month-old Patrick were diagnosed with Pompe disease  a rare and fatal neuromuscular disorder that affects only a few thousand children worldwide  usually leaving them with little to no muscle function  enlarged hearts  and severe difficulty breathing. The Crowleys were told to take their children home and \"enjoy their short time together...there is nothing that can be done.\" Raised in a blue-collar neighborhood in northern New Jersey  John Crowley  a recent Harvard MBA graduate working at Bristol-Myers Squibb  was just beginning to taste success in corporate America. But now he was absolutely determined to find a treatment to save his childrens lives. Frustrated with the pace of Pompe research  Crowley walked away from the corporate world at the age of 31 to help co-found a start-up biotech company  focused exclusively on producing a lifesaving medicine. In Chasing Miracles  John Crowley writes from his heart about how he and his wife set out to do \"whatever it takes\" against phenomenal odds to help Megan and Patrick first to survive  and then to thriveand to keep their family  including oldest son John Jr.  together and their marriage strong. He tells about learning to ask for help  about not losing faith  about coping with adversity  about the generosity and kindness of others  and  most importantly  about what it means to never  never quit. As Aileen Crowley writes in her foreword  \"This book is our familys attempt to share much of what we have learned  especially from our children  who have taught us more about life and love than we have ever taught them.\"\u003c\/p\u003e","brand":"My Store","offers":[{"title":"Default Title","offer_id":67598816084021,"sku":"ByrdShop_1557049106","price":20.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0627\/8139\/0901\/files\/9781557049100.jpg?v=1790934010","url":"https:\/\/atxbooks.com\/products\/chasing-miracles-the-crowley-family-journey-of-strength-hope-and-joy-9781557049100","provider":"ATX Books","version":"1.0","type":"link"}