Last Dance at the Savoy: Life Love and Caring for Someone with Progressive Supranuclear Palsy

About this book

When Kathryn Leigh Scotts husband was diagnosed with progressive supranuclear palsy (PSP) a neurological disease for which there is (so far) no cure it was a devastating time for both of them not least because so little is known about the cause or treatment of a disease that affects some 20 000 Americans a number similar to that of Lou Gehrigs disease (ALS). Last Dance at the Savoy is both a personal story about Scotts husband Geoff Miller the founding editor of Los Angeles magazine who lived life fully despite having a terminal illness and a sharing of her insights on dealing with the day-to-day issues of caring for someone with a progressive neurological condition. Scott "often yearned for someone to figuratively take my hand and walk with me through the difficult times; I hope through this book I can reach out to you with encouragement and practical advice." Last Dance at the Savoy includes a resource guide that provides facts about prime-of-life diseases; contact information for support organizations research studies and clinical trials; where to find handicap products and equipment; and recommended caregiving publications and family conferences. Contains a foreword by Yvette Bordelon MD PhD a neurologist at UCLA whose clinical work involves the diagnosis and treatment of movement disorders. A percentage of royalties from Last Dance at the Savoy are donated to CurePSP.